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Clock ticking on autism legislation

Thursday, September 28, 2006




The Combating Autism Act is Congress's $1 billion effort to chase down the cause of the disorder and treat those in its grip.

Onboard are New Jersey's two senators and 11 of its 12 representatives -- Rep. Scott Garrett, R-Wantage, has not taken a position and the 13th seat is vacant. It has huge support from the country's most influential autism groups and advocates.

The legislation passed unanimously in the Senate on Aug. 3. Yet it is running out of time in the House of Representatives, where sponsors have mere days to introduce it before Congress goes into recess Oct. 6. The bill needs a majority of 218 representatives to pass. It has 190, according to a list compiled by CombatAutism.org, a coalition of advocates.

"We would like to pursue this this year," said Lisa Cohen, chief of staff for Rep. Diana DeGette, the Colorado Democrat who is a primary sponsor. "We're hopeful, because the bill has broad bipartisan support both in the House and the Senate."

autism

In Autism's Grip


Complete coverage: In Autism's Grip

Forum: A place for parents, teachers and others to discuss the broad spectrum of autism's effects.

Over five years, the bill aims to direct $643 million for research through the National Institutes of Health, $210 million for therapy and other services for autistic youth and adults and $75 million for public education. It calls for the screening of every child in America, because therapies for autism work best when started at a young age. It demands that the director of the National Institutes of Health make autism a priority, with annual reports to Congress.

The research money could be a boon for autism specialists at the University of Medicine and Dentistry of New Jersey and Rutgers and Princeton universities.

"Clearly, New Jersey, as a leader in this field for more than four decades, would benefit both in the health-related context as well as in the potential biomedical research and related sciences that are actually being conducted here," said Sen. Robert Menendez, D-N.J., one of the bill's sponsors. "If it went through the full Congress this year, it seems like the benefits could begin to flow at the end of next year."

Of course, President Bush's signature is crucial -- and he has not publicly committed to the legislation. And some believe that election-year politics is making some House members leery of committing to a $1 billion expenditure.

"The reason it's being held up in the House has to do with how much money the present majority wants to spend on health care in general," said Rep. Steve Rothman, D-Fair Lawn. "They don't want to come up with a figure before the election."

ASK OUR REPORTERS


If you have questions for the reporters who worked on In Autism's Grip, please e-mail them to autism@northjersey.com before noon Monday. Include your name and hometown. Although we can't address every e-mail, our reporters will post answers to selected questions on our Web site by noon on Wednesday.

To continue the conversation with members of the community, join the forum at northjersey.com/autism.

Rep. William J. Pascrell Jr., D-Paterson, said his colleagues have no time to spare, particularly when some research suggests that autism is caused by environmental factors -- a great concern in a state with the country's highest number of Superfund sites.

"I think that while this is far from what we need, we need to get it passed immediately," Pascrell said of the bill. "The House of Representatives is like a dinosaur. It needs its tail whacked so many times."

New Jersey's one holdout is Garrett.

"It's still under consideration for him," said his press secretary, Audrey Jones. "Often he doesn't say how he's going to vote ahead of time."

A Republican colleague and longtime advocate of autism causes, Rep. Christopher H. Smith of Mercer County, said the House could save time and scrap its version of the bill.

"At this point, this late in the game, just take the Senate bill and pass that," he said. "Avoid a conference. I'm saying, 'Mr. Speaker, post the Senate bill.' The sooner this gets down to the president, the better. Get it down to the president. He'll sign it in an instant."

But the Bush administration wouldn't confirm that.

"We don't have an official position on the bill," said Peter Watkins, a White House spokesman.

E-mail: younge@northjersey.com

 

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